Together we're building a future where no one faces rare diseases alone
YOHRA
About Us
YOHRA transforms rare disease advocacy by empowering young voices to lead meaningful change in awareness, support, and innovation for rare disease communities worldwide.
Impact Statistics
- Over 400 million people affected by rare diseases globally
- Average diagnostic delay of 4.8 years
- Youth advocates from diverse backgrounds making a difference
- Global network spanning Asia-Pacific, Europe, and North America
Our Core Focus Areas
We believe in the power of youth leadership, global inclusivity, digital innovation, and evidence-based advocacy to create meaningful change in the rare disease community.