Together we're building a future where no one faces rare diseases alone

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Now download our High-caliber policy paper.

2025 Volume I: Leveraging Digital Health Solutions to Shorten Diagnostic Delays for Rare Diseases (pdf)

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2025 Volume II: Harnessing AI to Foster Global Collaboration and Access to Rare Disease Treatment (pdf)

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2025 Volume III: YOHRA Participation Report: Asia-Pacific Forum on Sustainable Development 2025 (pdf)

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A Non-Profit Organization registered at Geneva.

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